Parenting Tips for Parents with Lupus

Parenting Tips for Parents with Lupus
Parents' health problems will certainly have a direct impact on the child's condition, especially in terms of attention and satisfaction of their needs. The reason is that lupus will affect all roles in the family. Even so, you don't need to worry because there are a number of techniques that will help you play the role of parents with lupus better.
Tips for caring for children with lupus
  1. Make your health a priority. As a parent with lupus, you often feel guilty for always putting your own health first. Especially considering that most parents always give priority to children. But remember, this does not happen to you. If you don't prioritize your own health, that means you don't care about children. Try to always be fit and in good physical condition to spend more time with children.
  2. Remember the advice you received on the plane: in an emergency, first put on yourself an oxygen mask, then help your children. Focus on health care with adequate rest, reduce stress, and do regular check-ups.
  3. Create new traditions with children. If you are a parent with lupus, you may not be able to do as many things as parents and their children usually do. Do not be discouraged. Instead, look for new traditions that bring you closer to children by using new activities and activities based on your abilities.
  4. Make sure all family members understand your condition. As a parent with lupus, your health will change dramatically. Can not be denied. One day, you might feel very good, but the next day you will feel weak and unwell. Of course, it will be difficult for your family to follow. You can use numbers to express your condition, with 1 to describe bad conditions and 10 for very good conditions. Write numbers on the chalkboard in the family room or kitchen so everyone knows.
  5. Stop feeling guilty. Parents with lupus often feel that they must be able to do more for their children. Remember that your condition is not an unfavorable mistake. Instead of feeling guilty, find the right solution for every obstacle that children face.
How to talk about lupus to children

As we get older, children will be able to understand that something is different from their parents. You often feel uncomfortable if you have to talk to your children about lupus you have. However, as a parent with lupus, the best thing to do is to convince children of your realistic perspective about your health. Here are some tips to explain the lupus that you have.

  • Explain the basics. Pay attention to the child's ability to understand the concept of lupus. You can explain to children simple things about lupus and slowly broaden their horizons as we get older.
  • Explain that lupus is not like cancer. Lupus will not get worse. Conversely, this disease cannot be predicted with fluctuating health conditions.
  • Let them ask. You don't need to explain all the information about lupus to children. Let the children talk to their questions.
  • Ask them what they know about lupus. Without knowing it, your child may have been looking for information about lupus. In this way, you no longer need to repeat the explanation and only correct the child's misunderstanding.
  • Unhealthy physical condition as a whole is indeed a difficult thing to go through when you have to take on the role of parent. However, this does not prevent you from continuing to play a role in the growth and development of children. Be the best parent and never be compared to others.


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